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SPONSORED SILENCE
(12 December 2004)
With special thanks to Julie Armstrong
1st Cookham Friday Beaver Colony did an
excellent job in raising money for research into the skin
condition Epidermolysis Bullosa (EB).
On 12th November they held a 15 minute
sponsored silence and raised a total of £261.00!
They
learned about this condition after one of the Beavers parents alerted
them to a family friend with EB, Mia Nye, who is 15 months old.
EB is basically a rare genetic
disorder that causes blisters when the skin is rubbed. There are
different forms of the disease but little Mia has Herlitz Junctional, a
fatal form.
Her parents Brian and Maxine came down to
the Scout Hut on 10th December 2004 to thank the Beavers personally for
their efforts and kindness and introduce them to their very special
little girl.
If you would like to know more about this
condition please go to www.debra.org.uk
.
If you would like to sponsor a trip to
China where there is to be a walk along the Great Wall on
behalf of Mia and EB please visit www.justgiving.com/4Mia
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